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Rare Disease – XtremeCuztoms

Category: Rare Disease

Second Chance

A brave mother with a rare disease writes inspirational songs for her teenage daughter to sing, before receiving a transplant where the odds are 50/50. A documentary that captures the incredible strength of family and music. …


Miracles Abound for Boy With Rare, Devastating Diagnosis

Before Lucas Cote had ever had a full neurological exam, his mother sensed something was wrong—despite a pediatrician who dismissed concerns. For Dr. Jenni Bush, a quick prognosis was a necessity to fast-track her son’s recovery from whatever was at the root of his involuntary movements, inability to breastfeed, head lag, and lack of eye movement….


Mom Thinks Her Little Girl Just ‘Needs Glasses’–then Doctor Gives Shocking News: ‘It’s Fatal’

Melissa had always been reliant on “planning” to determine her own destiny. She planned a successful business with her husband Dean Pollman; and together, they built a blended but “perfect” family, having four beautiful kids, and what seemed like the perfect life—going on camping trips, boating, and skiing in the winter—in Salem, Oregon. But seldom, if ever,…